We offer comprehensive and personalized care to patients with clotting disorders such as hemophilia and other conditions
Our clinical staff has the experience and knowledge to help you access medications and support you with personalized care and valuable services.
Patients with rare genetic conditions need a coordinated care team to streamline the process to access their medications.
LEARN MORE ABOUT HEMOPHILIA
Usually, when bleeding occurs, blood cells gather to form a clot and stop the bleeding.
In the case of hemophilia, the body doesn’t have enough coagulation factors to gather and stop the bleeding. Therefore, hemophilia patients may bleed for a prolonged time, sometimes even spontaneously.
Small scratches are no big deal. The most significant cause for concern with this condition is internal bleeding, which may damage organs, tissue, and joints, as well as be potentially fatal
The following are symptoms and signs of hemophilia:
- Unexplained and excessive bleeding from cuts or injuries, or after surgery or dental work
- Large or deep bruises
- Unusual bleeding after a vaccine
- Painful, inflamed, or stiff joints
- Presence of blood in urine or stools
- Unexplained nosebleeds
- In infants, unexplained irritability
- Symptoms vary based on the type of hemophilia inherited.
There are three types of hemophilia:
- Hemophilia A (most common)
- Hemophilia B
- Hemophilia C (its signs and symptoms are milder than for the other types)
Several complications are known to occur in patients with this condition. These include deep internal bleeding, joint damage, high risk for infections from blood transfusions, and adverse reactions to coagulation therapy.
Although there is no cure for hemophilia, most patients may live long without complications when providedadequate treatment
Facts about hemophilia:
- It is usually diagnosed at about nine months of age. A diagnosis will almost always have been reached by the time the patient turns 2 years old.
- The global incidence of hemophilia is not known with certainty. The number of cases is estimated at over 400,000 people.
- Hemophilia affects 1 out of every 5,000 males.
- Each year, approximately 400 babies are born with hemophilia A in the United States.
- Since this is a generic disorder, it can sometimes be diagnosed before birth by running a test on the fetus.
- Hispanic patients with severe hemophilia are twice as likely to develop an inhibitor (antibodies that limit the effectiveness of treatment).
- Women who are carriers of hemophilia show a reduced range of joint movement, compared to women who don’t have the gene for hemophilia.
- Although most forms of hemophiliaare considered hereditary, nearly 30% of patients have no family history of the disease.
Although there is no cure yet, hemophilia patients can lead an active and productive life with adequate care and treatment.
Hospitalization and mortality rates for hemophilia-related complications are 40% lower in patients who receive care for the condition at specialized hemophilia treatment centers, when compared to the rates of patients who do not receive this kind of care.
Trust our team of health care professionals to help you manage your -prescriptions for hemophilia treatments. We collaborate with your physician and your health care insurance company to make sure you receive your treatment and to help you access the financing sources available, if you qualify.
At Special Care Pharmacy Services, we have the resources you need to manage your disease successfully, including prompt medication deliveries, home infusion supplies, and self-infusion training from our nursing staff. Our clinical staff will be with you every step of the way, advising you about your condition and helping you adhere to your treatment and adjusting it to your lifestyle.
We offer products and services for rare clotting disorders, such as factor deficiencies, and Von Willebrand disease.
LEARN MORE ABOUT GROWTH HORMONE DEFICIENCY
We understand the unique challenges presented by growth hormone deficiency.
We are here to help you face those challenges so you can enjoy the good life quality you deserve.
We answer your questions and support you during your treatment, and we work with your physician and your health plan company to coordinate your care.
We can also check if you qualify for third-party financial assistance through medication copay programs from pharmaceutical companies and nonprofit organizations, and we help you apply for these programs.
LEARN MORE ABOUT RARE DISEASES
Patients with rare diseases often require orphan drugs or specialized infusions.
We can meet your special needs. At Special Care Pharmacy Services, you receive help, free deliveries, home treatments, education about the disease, treatment adherence support, and financial assistance, if you qualify, among other services. We also send post-infusion reports to the prescribing physician.
We strive to simplify complicated processes as much as possible so you can enjoy a healthier life.
Our rare disease program targets conditions such as:
- cystic fibrosis
- hereditary angioedema
- alpha-1 antitrypsin deficiency
- hypokalemic periodic paralysis
- primary immune deficiency disease (PIDD)
- primary insulin-like growth factor-1 (IGF-1) deficiency
- among others
We work with your physician on your treatment plan and with your payers to verify your insurance coverage benefits and process pre-authorizations. We also work with pharmaceutical companies on their latest research and financial assistance programs for eligible patients.
It may be complex, but that’s why we’re here. We want to make the process easier for you, so you can focus on your health and well-being.
Centers of Excellence
Select a Center of Excellence to learn how we can help you at each step of your treatment.