We provide comprehensive and personalized treatment for bleeding disorders, such as hemophilia, and genetic rare conditions.
Our clinical staff has the experience and expertise to help you gain access to the latest, most effective drugs and support you with high-touch, personalized care and valuable patient services.
Patients with genetic and rare disorders need a coordinated care team that can streamline a potentially complicated process.
LEARN ABOUT HEMOPHILIA
Normally, blood cells stick together to form a clot and stop a bleeding.
In the case of hemophilia, the body doesn’t have enough blood-clotting factors (either plasma or platelets) to bond together and stop the bleeding. Therefore, hemophilia patients bleed excessively, and sometimes, spontaneously.
Minor cuts are not an issue. The main concern is internal bleeding, which can damage organs, joints, tissues, and can be life-threatening.
These are some signs and symptoms of hemophilia:
- Unexplained and excessive bleeding from cuts or injuries, or after surgery or dental work
- Many large or deep bruises
- Unusual bleeding after vaccinations
- Pain, swelling or tightness in joints
- Blood in the urine or stool
- Nosebleeds without a known cause
- In infants, unexplained irritability
Symptoms vary depending on the type of hemophilia inherited.
There are three types of hemophilia:
- Hemophilia A (the most common)
- Hemophilia B
- Hemophilia C (signs and symptoms are milder than in the other types).
There are known complications of this disease. Among them, deep internal bleeding, damage to joints, high risk of getting infections from blood transfusions, and adverse reactions to blood clotting treatment.
While there is no cure, most people lead nearly normal lives with proper treatment.
- It’s usually diagnosed at an average age of nine months, and almost always by age 2.
- Worldwide incidence of hemophilia is not known with certainty. It is estimated at more than 400,000 people.
- It affects one in 5,000 male births.
- About 400 babies are born with Hemophilia A in the U.S. each year.
- Because it’s a genetic disease, sometimes it can be diagnosed by testing the fetus before birth.
- Hispanic patients with severe hemophilia are about twice as likely to get an inhibitor (antibodies that stop treatment from working).
- Women who are hemophilia carriers showed a reduced range of joint motion compared to non-carrier women.
- Although the disease is hereditary, about 30% of hemophilia patients have no family history of the disorder.
Mortality and hospitalization rates for bleeding complications related to hemophilia were 40% lower among people who received care in hemophilia treatment centers than among those who did not receive this care.
Trust our team of professional healthcare providers to help you manage hemophilia. We work in collaboration with your doctor, insurance company, ensure treatment adherence and help you access financial aid available to cover the costs of treatment, if qualidfied.
We have the resources you need to successfully navigate your disease, including on-time deliveries, home infusion supplies and self-infusion training by our registered nurses. Our clinical staff will be with you every step of the way, helping you with disease education, therapy adherence, and lifestyle management.
Special Care Pharmacy offers products and services for rare bleeding disorders such as Factor I, Factor VIII, Factor X and Factor XIII deficiencies and Von Willebrand disease.
LEARN ABOUT GROWTH HORMONE DEFICIENCY
We understand the unique challenges growth hormone deficiency presents.
We’re here to help you tackle these challenges so that you can have the good life you deserve.
We answer your questions, support you through treatments and work with your doctor and insurance company to coordinate your care.
We can also inquire if you qualify for third-party financial assistance through pharmaceutical companies and nonprofit organizations. We are able to help you apply for these programs.
LEARN ABOUT RARE CONDITIONS
Patients with rare diseases often require orphan drugs or specialty infusion.
We can meet your special needs. With SCPS, you get support, free delivery, in-home treatments, post-infusion reports to prescribing physicians, disease and adherence education, and third-party financial assistance, among other services.
We strive to make a complicated process as simple as possible, so you can enjoy a less rare, more ordinary life.
Our rare diseases program supports complex conditions such as:
- cystic fibrosis
- hereditary angioedema
- alpha-1 antitrypsin deficiency
- hypokalemic periodic paralysis
- primary immune deficiencies disease (PIDDs)
- primary Insulin-like growth factor I (IGF-I) deficiency
- and others
We work with your doctor on your treatment plan, and with your insurance coverage provider in order to verify your coverage benefits and to coordinate prior authorizations. We also collaborate with pharmaceutical companies on their latest research and patient assistance programs that provide financial aid for patients who qualify.